This project aims to empower Canadians through a trustworthy health access platform that enables them to view, share and manage their own health data in a secure manner.
Project Budget* - $5.9M
Partner Co-investment* - $3.7M
Supercluster Co-investment* - $2.2M
The benefits of data-driven healthcare will empower patients to improve how they manage their health, wellness, and care journey. The emergence of tailored digital health, based on the use of AI, smartphone apps, and sensors also requires comprehensive data and innovative ways to safely manage access to personal information.
￼Secure patient-controlled data access and portability of health data is currently limited. Concerns about the privacy of patients and data breaches limit regular, secure sharing of health information. For many patients, the need for special passwords or IDs, or even physical code generators, poses further challenges to the effective and efficient sharing of needed clinical information.
￼To empower patients and enable health care providers with improved access to health data, a digital trust framework that operates seamlessly across the entire health care system is needed. This framework will drive better health care delivery for the system and better health outcomes for patients.
Trustsphere is being developed by the consortium led by Careteam Technologies which includes: The University of British Columbia, Secure Key, IDENTOS, Smile CDR, MedStack and BC Children’s Hospital Research Institute. The TRUSTSPHERE mandate is to close the trust gap that exists today between patients and providers – complexity and risk keeps these transactions from going digital.
The platform will apply open standards and a co-operative governance model that will allow users to easily and securely share confidential information through online health care services, in compliance to the highest healthcare industry and public standards of privacy protection . Patients will control the sharing and access to the information they deem sensitive and will be able to choose what data can be shared with whom, for what purpose, when, where and for how long.
Patients will benefit from better health care and easier access to fulsome health information that will provide cost-efficient and effective care, eliminate duplication, reduce gaps, and improve overall care quality.
Health ministries, health care organizations, and hospitals will be able to harness the power of digital medicine and reap the benefits of improved information, tools, risk management and fewer operational challenges getting information.
The pilot phases will start with children in B.C. with Type 1 diabetes with the goal to bring in other patient groups and to expand across Canada and then to the world.