
Autism Sharing Initiative
Building the first federated and fully-protected global network for sharing genomics and biomedical data to accelerate research and develop precision healthcare approaches for individuals with autism.
Project Overview
The Problem
Over the past 20 years, more and more people have been diagnosed with neurodevelopmental conditions.
Autism, or autism spectrum disorder, refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviours, speech and nonverbal communication — each autistic person has a distinct set of strengths and challenges. There is not one autism but many subtypes, influenced by a combination of genetic and environmental factors. Autism affects approximately one in 66 Canadians.
How We Are Solving It
Project Lead
Project Partners
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“Understanding autism requires a collaborative and globally representative ecosystem. The siloed nature of individual research and clinical datasets is a fundamental roadblock to realizing the promise of data-driven personalized healthcare. Recent advances in generating international standards for data sharing enable the value of data to be unlocked while protecting privacy, which promise to transform biomedical research and translation into clinical care.”
Read the Announcement (June 2021) CEO, DNAstack